Ebook The Revised Fundamentals of Caregiving: A Novel, by Jonathan Evison
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The Revised Fundamentals of Caregiving: A Novel, by Jonathan Evison
Ebook The Revised Fundamentals of Caregiving: A Novel, by Jonathan Evison
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In The Revised Fundamentals of Caregiving (releasing June 24, 2016 as a Netflix Original Film titled The Fundamentals of Caring, starring Paul Rudd and Selena Gomez), Jonathan Evison, author of the new novel This Is Your Life, Harriet Chance! and the New York Times bestseller West of Here, has crafted a novel of the heart, a story of unlikely heroes in a grand American landscape. For Ben Benjamin, all has been lost--his wife, his family, his home, his livelihood. Hoping to find a new direction, he enrolls in a night class called The Fundamentals of Caregiving, where he will learn to take care of people with disabilities. He is instructed about professionalism, about how to keep an emotional distance between client and provider, and about the art of inserting catheters while avoiding liability. But when Ben is assigned his first client--a tyrannical nineteen-year-old boy named Trevor, who is in the advanced stages of Duchenne muscular dystrophy--he soon discovers that the endless service checklists have done nothing to prepare him for the reality of caring for a fiercely stubborn, sexually frustrated teenager who has an ax to grind with the whole world. Over time, the relationship between Ben and Trev, which had begun with mutual misgivings, evolves into a close friendship, and the traditional boundaries between patient and caregiver begin to blur. The bond between them strengthens as they embark on a road trip to visit Trev’s ailing father--a journey rerouted by a series of bizarre roadside attractions that propel them into an impulsive adventure disrupted by one birth, two arrests, a freakish dust storm, and a six-hundred-mile cat-and-mouse pursuit by a mysterious brown Buick Skylark. By the end of that journey, Trev has had his first taste of love, and Ben has found a new reason to love life. Bursting with energy and filled with moments of absolute beauty, this big-hearted and inspired novel ponders life’s terrible surprises as well as what it takes to truly care for another human being.
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Product details
Paperback: 304 pages
Publisher: Algonquin Books (May 7, 2013)
Language: English
ISBN-10: 1616203153
ISBN-13: 978-1616203153
Product Dimensions:
5.5 x 0.8 x 8.2 inches
Shipping Weight: 12.6 ounces (View shipping rates and policies)
Average Customer Review:
4.5 out of 5 stars
247 customer reviews
Amazon Best Sellers Rank:
#405,796 in Books (See Top 100 in Books)
I feel like I discovered a Picasso painting in my attic. I had never heard of Evison before reading this novel, and now I wonder how I ever missed him. If you're like me, you'll think that you've been reading this book for 30 minutes only to discover that it's 2:00 A.M. and you've been reading for three hours.On the surface, Evison's writing appears simple, until you start recognizing that he is painting beautiful images and evoking a wide range of emotions. This book could have been a maudlin mess of melodrama in the hands of a lesser writer, but Evison manages to avoid this while presenting a very emotional work. His characters undergo an Odyssey that I was extremely willing to go along with.Lastly, I will say that this novel also has comedy liberally interspersed throughout the narrative that oftentimes created a belly-laugh for me. I will be reading more of Evison's work and I hardily recommend him to you.
Contemporary American literary fiction is overflowing with deadbeat protagonist losers and shlimazels who dig themselves deeper and deeper into their own spiritual mire and vomit. I thoroughly dislike most of them. This is one of the very few novels which pulls it off deftly, with style, pathos, and humor. It's filled with insights which are eminently relatable, even if your life isn't falling apart (yet).The movie version rearranges and adds story elements which I kind of wish were in the book. But both are satisfying in their own way. I will read more of this author.
Call me sentimental but I LOVED this book. Based upon the quickly crumbling life of Humbert Humbert, ooops, I mean the equally curmudgeonly (though much younger) Benjamin Benjamin, the novel becomes part Little Miss Sunshine, part Garden State. Our narrator takes to the road in a Handicapped Van with his "side-kick," Trevor who suffers acutely from Muscular Dystrophy. To Evison's credit, he does not romanticize Trevor's condition nor does he attempt to make his suffering a metaphor for anything but itself---senseless, deep and mostly meaningless suffering. The descriptions of Benjamin's time spent tending to Trev's various bodily limitations are clinical and direct. At times, however, I wished that Evison had kept up with the clinical detail during the road trip since it seems that traveling with Trevor was supposed to be part of the gauntlet.At the heart of the book, however, is the shared goal of the caregiver and the patient to find meaning. Benjamin's body works just fine, but due to an accident of which we learn in fits and starts throughout the novel, he is dystrophied emotionally and psychologically, and once we learn the full horror story of his tragedy, we realize that we would probably be in his condition as well. Because the writing was so good and the characters sympathetic, I was willing to forgive the derivative nature of the van ride across the country and the very obvious Garden State symbol of stopping/finding redemption at one of America's deepest holes (literally). I read this book to buy time while my wife finishes up Jonathan Tropper's new novel (which she swiped before I could); I am thrilled I read it and I'm glad to discover a new strong voice in American fiction.
With a theme of dealing with loss/regrets and moving on, The Revised Fundamentals of Caregiving is in part an “unlikely buddies†story. The pair consists of a teenager with muscular dystrophy, Trev, and his caregiver, who has the unlikely name of Benjamin Benjamin. They eventually take a road trip from Washington State to Utah, and along the way meet an assortment of characters, including two rather pathetic fathers. Ben, the narrator, is pretty pathetic, too; he’s stuck in a low-wage job, has no prospects for the future, is in the process of getting divorced, and has a terrible tragedy in his past.This novel reminded me of The Unlikely Pilgrimage of Harold Fry, by Rachel Joyce, which I also enjoyed. In that novel, Harold also had a tragic past, and also met a variety of people on his journey (although he traveled on foot). Also like The Unlikely Pilgrimage, in The Revised Fundamentals of Caregiving, the author uses a literary device that at times I find annoying: in order to build the story and/or create some conflict, he withholds pertinent information about the protagonist’s past from the reader. The narrator, of course, knew the entire history and could have revealed the story of his tragedy from the very beginning. The process of doling it out in dribs and drabs through a series of scenes from the past does at times bother me; I want to say “Just tell me, darn it!â€That said, despite the rather depressing themes, it's a fun read. I enjoyed the interaction between Ben and Trev, which was often very funny, although you might appreciate it more if you've ever been a teenaged boy yourself. I also liked the fact that Trev is portrayed not just as a cripple, but as a real person with a personality, shortcomings, and strengths of his own. And while the ending was realistic, I have to say I didn’t like it very much. Overall, though, I still liked it enough to give it four stars.
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